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RISE IN ASSISTED LIVING LAWSUITS INDICATES THE NEED FOR A CONSUMER-CENTERED MODEL OF CARE

 

M. Fetterolf1, P. Kao2, N. Castle1

 

1. University of Pittsburgh, USA; 2. Department of Anthropology, Harvard University, USA. Corresponding author: Philip Kao, Harvard University, USA, philip_kao@fas.harvard.edu

Jour Nursing Home Res 2019;5:24-26
Published online June 5, 2019, http://dx.doi.org/10.14283/jnhrs.2019.5

 


Abstract

Across the United States, 60% of Assisted Living administrators noticed an increase in legal claims; meanwhile nearly 75% noticed an increase in lawsuits and 71% noticed an increase in settlements. This article asks whether or not the rise in legal pressure may be attributed to a higher proportion of residents with moderate to severe cognitive impairment in Assisted Living.  More broadly, the findings indicate that there is a lack of consumer choice and solutions for the elderly in need of long-term services. As a short-term option to mitigate the rise in legal pressure, long-term facilities could explore ways to work with residents in defining various thresholds of care that are safe, sustainable and economically sound whilst preserving certain aspects of residents’ desired lifestyles. Over the long term, the United States needs to develop innovative options for the provision of long-term care services with a focus on redesigning care for older adults with their input. The consequences of such a positive change are examined.

Key words: Assisted Living, Nursing Homes, Consumer-Centered Healthcare, Lawsuits, Dementia.


 

Introduction

In the US, some attorneys are finding that after years of targeting Nursing Homes, law firms are shifting their focus toward Assisted Living. Some firms are using a “nursing home lawsuit playbook” to litigate against these expanding facilities (1).  As the number of older adults in Assisted Living with moderate to severe cognitive impairment increases, facility administrators face severe challenges to care for the complex needs of residents while maintaining the values which Assisted Living was founded upon, namely: care, dignity, autonomy, and privacy.
In February 2017, the authors sent out 225 research questionnaires, by postal and electronic mail, to Assisted Living administrators in ten states across the US.  Of the 225 facilities, 85% percent of them listed having “memory care units” on their websites. Our research surveys were structured to capture opinion-based, qualitative data from administrators regarding their perceptions of the number of claims, lawsuits, and settlements trending over the past five years. The methodology for collecting responses from the various facilities across the country was based on geographic spread, and the presence of a “memory care unit” in each respective Assisted Living Facility (ALF). Additionally, the majority of the facilities we targeted were medium-sized. The surveys solicited information about the types of lawsuits, prevalence of dementia in their facility, and the effects that legal pressure might have had on notions of resident choice, dignity, privacy, and safety (2). This study received 58 responses from nine states with a total 25.7% response rate overall (3).

 

Results

Administrators were asked to appraise the number of claims, lawsuits, and settlements over the last five years. Almost 60% of administrators noticed an increase in claims; nearly 75% of the respondents noticed an increase in lawsuits; and 71% noticed an increase in settlements.

Figure 1

 

Additionally, when asked to respond to the statement “Litigation is forcing ALFs to become more like nursing homes in terms of regulation”; 68% of administrators responded with somewhat or strong agreement; 22% neither agreed or disagreed; and 10% showed some form of disagreement.

 

Consumer Driven Assisted Living

The Assisted Living industry has become a target for litigation due to large variation with respect to facility size, admission policies, level of complex care needs (e.g. mobility support, eating/medication assistance) and dementia care capability (4). Growth in the Assisted Living sector across the US has been attributed to its market model of care promoting resident independence, autonomy, privacy, and dignity (5), as well as serving the primary provider for residential care for older adults with dementia (6).
As a point of clarification, ALFs offer residents assistance with the activities of daily living in a residential setting.  In contrast, skilled nursing facilities (SNF) are places that can be temporary or longer term stays for people who need constant care and medical treatment from a registered nurse 24/7. Historically, the process of identifying a suitable home for a loved one has not been a consumer-driven process. Put simply, if an older adult can no longer live independently and does not require the level of support offered in skilled nursing, they are left to choose among the current supply of assisted living (or similar) facilities. In terms of care needs, this cohort accounts for the largest proportion of older adults needing supportive services. A combination of online research and touring of ALFs close to one’s current residence is the basis for a decision.  There is no shortage of checklists and online resources to select a home for an older adult (most sites appeal to the son or daughter of a loved one as opposed to the actual resident). Given that 60% of assisted living residents only relocate within a 10-mile radius from their home, and 80% relocate within a 25-mile radius, this is a very narrow range to find a suitable home (7).  As such, one is likely to be subject to the geographical definitions of quality and amenity; given that although the industry has rapidly expanded since its inception in the late 1970s, there has been no establishment of a threshold at or below which an ALF can provide adequate care without comprising resources and safety.
The establishment of a “threshold of care” should be an agreement between the resident and the facility in question. The facility shouldering responsibility should refer any individuals for whom they can no longer care for adequately and safely to more appropriate care settings such as SNFs. Residents with severe dementia are broadly defined as those who need non-stop assistance with daily activities and personal care. They lose awareness of recent experiences as well as of their surroundings; they also experience changes in basic physical abilities (including the ability to walk, sit, or even swallow sometimes). Furthermore, they have increasing difficulty communicating, and become vulnerable to infections, especially pneumonia (8).   One memory care unit administrator from a Pennsylvania ALF said that “The population that used to be in nursing homes is now in Assisted Living”, which suggests that the industry is reacting to increasing demand, market competition, and a changing population base, instead of responding to the way they can provide services, especially with respect to medium-severe dementia. In fact, the ‘patient’ populations in both ALFs and SNFs have changed because of particular social-economic factors, but the fact remains that ALFs have to figure out how to balance when dementia related deficits have reached a tipping point.
In 2014, seven out of ten residents in ALFs exhibited some form of cognitive impairment. More specifically, 29% of residents had mild impairment; 23% have moderate impairment; and 19% have severe impairment (6). Considering that ALFs are private facilities which need to provide an economically feasible margin through staffing, overhead, and private reimbursement (that is about half of the cost of a skilled nursing home bed) questions arise regarding whether ALFs are appropriately suited to provide care to individuals with moderate to severe cognitive impairment. This is a contentious point in the industry, given that less than half of ALFs have a registered nurse on staff or licensed practical nurse hours (4). Correspondingly, hospitalization rates for moderate to severe dementia residents were 69% and 42% higher respectively in ALFs than for similar residents in nursing homes (9). This also feeds into the issue of a lack in government regulations pertaining to ALFs.  Whether or not a consumer-driven model will provide an economic solution to finding appropriate care is still inconclusive.  After all, ALFs are emergent models that require more research and consumer-led education, lobbying, and outreach. Still today, very little research has shown the outcomes of care for dementia patients in Assisted Living.
The US can no longer assume that an older adult will fit into one of three global/standard care models. We must begin to redesign care for our older adults by meeting older adults where they are in their life course, and with their input, design supportive care solutions that have the inherent ability to change as one’s care needs and preferences change. For example, cutting edge healthcare organizations are beginning to incorporate patient choice in one’s care plan. The creation of a care plan is multifactorial and based on one’s preferences. These preferences take into account treatment options between biomedicine and alternative medicine, one’s inclination towards pain, quality of life, risk and even types of healing that extend beyond the person, incorporating the larger family unit in the decision process. The long term care industry should facilitate autonomy.  Care plans should innovate and possibly draw from artificial intelligence in order to create self-learning models that could update and predict particular changes in care needs and outcomes.  Autonomy is difficult to start initiating when someone already has severe dementia.  A possible solution, however, could be to rescale the ‘resident autonomy’, allowing the resident (and/or his/her family) to customize a set of services and progressive models of care in line with one’s lifestyle and the kind of future life they want to live out.

 

Conclusion

Assisted Living administrators across the country, are reporting that the number of claims, lawsuits, and settlements are increasing. Most administrators believe that this increased legal pressure is bound to reshape the regulatory framework of the ALF. Although this study doesn’t provide conclusive evidence to state that higher proportions of residents with moderate to severe cognitive impairment in Assisted Living is driving this trend, our results suggest that this phenomenon may be one explanation for the observed rise in litigation and worthy of further research and policy action. A broader explanation for the rise in litigation could be that the Assisted Living industry is experiencing the effects of a non-consumer driven environment exacerbated by an increasingly diverse, wide and complex population of older adults.
The ideal solution to the rising legal scrutiny would be to re-establish assisted living to allow for individualized and dynamic care planning. However, this cultural shift will take time. A short-term necessity will be to clearly define the threshold care needs that Assisted Living can safely and economically provide. According to our research, a threshold of care should be defined through individual agreements between each resident and the facility. Ideally, the facility is obligated to provide the supportive care necessary to allow the individual to preserve the kinds of autonomy they desire. Increased autonomy may result in compromised safety metrics (e.g. an uptick in the number of falls). Therefore, if a facility decides to accommodate the kinds of autonomy a person wishes to have, that facility should be afforded some meaningful legal protection.
Given the well-documented variation across the Assisted Living industry and the lack of federal regulation, Kathryn Hawes states that the effort to define quality in Assisted Living takes on a “Sisyphean cast”. Hawes goes on to say that “[…] there has been substantial progress with nursing home care, at least at a conceptual level, the rock slips and one is then faced with the uphill challenge of considering quality’s meaning in a new and different care modality— [Assisted Living] (10).”  If no threshold of care standard is established and institutionally monitored, lawsuits will continue to increase which may force policy initiatives to be reactive and tip the balance disproportionately toward safety as opposed to autonomy; a criticism common to nursing homes. It is time for ALFs to set reasonable boundaries and reestablish themselves as innovative care providers. ALFs can shield themselves from legal scrutiny and reserve a place for individuals that need person-centered care by shifting the focus from developing a solution for a population to designing a dynamic solution based on the ever-changing needs and input of the consumer.

 

Conflict of interest: There were no identified conflicts of interest in this article.

Ethical standard: All respondents of the survey were informed how their responses would be used. There were no financial or personal relationships that would bias the findings.

 

References

1.    Adelman, R. Esq. (2013). Assisted living lawsuits: An ounce of prevention is worth a pound of cure. Geriatric Nursing, 34(16), 6e169.
2.    The survey was reviewed by two health policy lawyers and a long-term care quality expert at the University of Pittsburgh’s School of Public Health before distribution.
3.    The nine states were broken down into three regions (East, Middle, and West) and included: NY, PA, FL, KY, SD, CO, TX, CA, NV. No Assisted Living facilities in OR provided a response.
4.    Han, K., Trinkoff, A. M., Storr, C. L., Lerner, N., &Yang, B. K. (2016). Variation Across US Assisted Living Facilities: Admissions, Resident Care Needs, and Staffing. Journal of Nursing Scholarship.
5.    Mollica, R. (1998). State regulation update: States are adopting new rules at a brisk pace. Contemporary Long Term Care, 21, 45-49..
6.    Zimmerman, S., Sloane, P. D., & Reed, D. (2014). Dementia prevalence and care in assisted living. Health Affairs, 33(4), 658-666
7.    2009 Overview of Assisted Living – AHCA/NCAL
8.    As defined by the Alzheimer’s Association – https://www.alz.org/alzheimers-dementia/stages
9.    Sloane, P. D., Zimmerman, S., Gruber-Baldini, A. L., Hebel, J. R., Magaziner, J., & Konrad, T. R. (2005). Health and functional outcomes and health care utilization of persons with dementia in residential care and assisted living facilities: comparison with nursing homes. The Gerontologist, 45 (suppl. 1), 124-134.
10.    Hawes, C., & Phillips, C. D. (2007). Defining quality in assisted living: Comparing apples, oranges, and broccoli. The Gerontologist, 47(suppl_1), 40-50.

IMPLEMENTATION OF THE MONTESSORI PROGRAM IN ASSISTED LIVING: POSITIVE OUTCOMES AND CHALLENGES

 

J. Brush1, N. Douglas2, M. Bourgeois3

 

1. Brush Development, Chardon, OH, USA; 2. Central Michigan University, Mount Pleasant, MI, USA; 3. University of South Florida, Tampa, FL, USA.  Corresponding author: Jennifer Brush, Brush Development, 9935 Campton Ridge Drive, Chardon, OH 44024, jennifer@BrushDevelopment.com, 440-289-0037

Jour Nursing Home Res 2018;4:42-48
Published online November 19, 2018, http://dx.doi.org/10.14283/jnhrs.2018.9

 


Abstract

The purpose of this study was to evaluate the impact of the implementation of the Association Montessori Internationale (AMI) Montessori for Dementia and Aging (1) (MDA) program in a memory care Assisted Living community. A pre-post quasi experimental descriptive study was conducted with 29 elders in an assisted living community. The AMI MDA program1 was implemented over the course of one year; adoption of program features was documented pre- and post-implementation. Outcomes for elders included number of neuropsychiatric symptoms due to dementia (Cohen-Mansfield Agitation Inventory (2)), falls, medications and hospitalizations; attitude, attention and engagement (Observational Measure of Engagement (3)), affect (Observed Emotion Rating Scale (4)); and the Dementia Quality of Life Scale (5). The Benjamin Rose Nurse Assistant Job Satisfaction Scale (6) was used to measure employee job satisfaction before and after implementation of the program. After 1 year, the community had adopted 68% of program features compared to 28% at study start. Elders displayed significantly more positive emotions, affect, and feelings of self-esteem and belonging after the intervention; positive trends were documented for increased engagement. Overall, employee job satisfaction was higher after the implementation of the program; barriers to full implementation, however, were identified.

Key words: Montessori, aging, dementia, assisted living.


 

Introduction

A new person-centered approach for long-term care and aging in place communities, AMI Montessori for Dementia and Aging (1) extends the tenets of person-centered care by focusing on the abilities, needs, interests, and strengths of persons with dementia. This innovative team approach creates worthwhile and meaningful roles, routines, and activities for the person within a supportive physical environment. Montessori’s philosophy was to enable persons to be as independent as possible, to have a meaningful place in their community, to possess high self-esteem, and to have the chance to make meaningful contributions to their community. The purpose of this study was to evaluate the impact of the implementation of the AMI MDA (1) program on elder and staff outcomes in a memory care Assisted Living community. The AMI MDA program was created based on the pedagogical philosophy of Dr. Maria Montessori and evidenced based person-centered approaches (7) to dementia care.  The merging of the two disciplines results in a person-centered approach to life that addresses the cognitive, physical, spiritual, social and emotional needs of elders and those living with dementia. This approach facilitates changes to the way one interrelates with elders and people with dementia by improving the quality of interactions.  The goal of the program was to form and maintain a caring community that is aligned with elders’ needs, interests, and abilities by creating an environment that is carefully prepared to provide opportunities for success, choice, enhanced independence and self-initiated activity. Elders’ lives are therefore enriched through the engagement in roles, routines and activities, fostering a sense of community belonging and well-being.
The AMI Montessori for Dementia and Aging Advisory Board has established standards and quality indicators for the application of Montessori in an aged care setting (1).  The standards address three critical areas of program implementation: leadership; staff; and the prepared environment.  In a community that has fully implemented this philosophy, the organizsation’s leadership encourages elders to be actively involved in the decision making related to daily life.  Multi-disciplinary teams are created, with a commitment to working together, with the purpose of meeting the needs of each person in their care.  In addition, the organization’s leadership uses effective communication tools to give staff, families, and elders a full understanding about the Montessori approach. There are financial commitments to budget allocations for best practice resources and staff training is conducted by a certified AMI Montessori for Dementia and Aging Educator. There is a formal commitment to continuous improvement of the implementation of MDA.  For instance, staff collect, maintain and use a comprehensive individual profile of needs, interests and strengths. Through collaboration with elders and their families, staff actively seek out and create opportunities for elders to act independently, exercise choice, move about with freedom and engage in activities of interest. Throughout the day, observation is utilized as a key tool for reflection and identification of individual needs. The environment must be visually organized and aesthetically pleasing. Shared spaces in the care community must provide enticement to engage by having dedicated, interactive areas allocated for activities. A Montessori community has evidenced-based cues and modifications in the environment to support independence. The environment should offer a full complement of appropriate multisensory materials, resources and activities that are accessible at any time.

Study Purpose

The purpose of this project was to implement and evaluate the AMI MDA program in a memory care Assisted Living community.  The program had the following goals:
1. Demonstrate implementation of the MDA program by increasing the adoption of environmental, staff, and leadership features of the program.
2. Increase elder engagement in purposeful activities, improve sense of well-being, improve affect, reduce psychotropic medication use, hospitalizations and falls, and reduce occurrence of neuropsychiatric symptoms due to dementia.
3. Increase staff job satisfaction.

 

Methods

The Institutional Review Board of Ideas Institute approved all study procedures and consent forms. This study utilized a pre-post, quasi-experimental design to implement and evaluate outcomes of the MDA program in one Midwestern assisted living in the United States. The assisted living is part of a non-profit continuing care retirement community housed on two campuses that includes independent and assisted living as well as skilled nursing.  The assisted living area contains 42 private bedrooms and shared activity, dining and living room spaces.

Participants

Study participants were (1) 29 elders with dementia or other cognitive impairment who resided in the community and (2) 22 employees of the assisted living community. An introductory letter and consent form was sent to the person holding durable power of attorney for each elder in the community.  After receipt of the signed consent form, the authors reviewed the elder’s medical chart; completed a communication, cognitive and reading screening of the elder; conducted an observation during their daily activities; and completed the quality of life assessment. Participants who were employees of the assisted living community provided informed consent to complete the following: 1) a job satisfaction survey (6); and 2) a rating of the elder’s neuropsychiatric symptoms (2) throughout the course of 2-weeks.

Measures

Measures used to collect data from participants who were elders with dementia or other cognitive impairment included: 1) chart review confirming diagnosis of dementia or other cognitive impairment; frequency of hospitalizations, falls, neuropsychiatric symptoms due to dementia and medications per nursing notes in the six months before and 3 months after implementation of the program; 2) informal communication screening (8)) and reading screening (9)) ; 3) the Montréal Cognitive Assessment  (MoCA) (10); 4) the Observational Measure of Engagement (3); 5) the Observed Emotion Rating Scale (4)); and, 6) the Dementia Quality of Life Scale (5). Employee participants completed the Benjamin Rose Nurse Satisfaction Survey (6), and the Cohen-Mansfield Agitation Inventory (2) for elder participants in the study. Lastly, a program implementation checklist adapted from AMI MDA standards (Table 1) was also completed to assess program fidelity and measure specific elements of program implementation. All of these measures with the exception of the informal communication screening, reading screening and MoCA were re-administered post- implementation and are described in more detail below.

 

After informed consent was completed, the second author reviewed each participant’s medical record to confirm diagnosis of cognitive impairment or dementia related disorder. The number of current medications, falls and hospitalizations was also recorded in the prior 6 months pre-implementation (6-months prior to implementation month 1) and at 3- months post-implementation. Finally, nursing notes were reviewed by the second author to assess frequency of neuropsychiatric symptoms due to dementia in the prior 6 months pre-implementation (6-months prior to implementation month 1) and at 3-months post-implementation. Neuropsychiatric symptoms due to dementia were defined as events that were significant enough for the nursing staff to record in a log and included violence toward other elders, inappropriate sexual advances toward other elders and verbal lashing out toward care partners.
The informal communication screening (8) was administered to each elder as well. The participant was asked his or her age, primary language, and they were observed as to whether or not they had glasses and/or hearing aids. During this process, elders were asked to about their education, hobbies, former occupation, likes and dislikes. The researchers observed conversational features of the elder including the ability to maintain topic, to initiate new topics, to request clarification, to take turns and ask questions. Researchers also noted if the elder was verbal at the single word, short phrase, few sentences or many sentences level. A reading screening was then conducted with each elder (9). Elders were assessed according to the optimal font for oral reading and reading for following simple, 1-step directions.
The MoCA (10) was completed with each elder for descriptive purposes only. The MoCA is a well-studied cognitive screener assessing visuospatial and executive functioning, naming, memory, attention, language, abstraction, delayed recall and orientation. Normal cognitive functioning is considered to be a score of 26 or higher out of 30 possible points, adding an additional point for any individuals who have 12 years of education or less.

The Observational Measure of Engagement (3) involved the investigators rating each elder according to ‘Attention’ and ‘Attitude’ during a 5-minute observation of the elder during an activity. Attention was rated on a 4 point Likert scale where 1 corresponds to ‘not attentive’ and 4 corresponds to ‘very attentive’. Attitude was ranked on a 7 point Likert scale, ranging from 1 (very negative) to 7 (very positive). Inter-rater reliability for this measure was reported to be 84% for engagement outcome measures (3).
The Observed Emotion Rating Scale (4) was completed for each elder as well. The investigators ranked elders according to their facial affect and other qualities that display either negative emotions or positive emotions. The maximum score for the display of both positive and negative emotions is 5, corresponding to the idea that the participant strongly displays that emotion. The minimum score for the display of both positive and negative emotions is 1, corresponding to the idea that the participant never displays that emotion. Kappa reliability for each of these emotion ratings was reported to be .76 or higher and validity, and validity estimates were also deemed supportive of the measure.
The Dementia Quality of Life Scale (5) is a self-report measure of 5-constructs of quality of life: positive affect, negative affect, feelings of self-esteem, feelings of belonging, and experience of aesthetics. Visual supports, including a 24-point type size rating scale and captioned pictures representing the topic of the questions, were used to support communication during the administration of this measure. Internal consistency of all constructs was reported to be .67 or higher
The Benjamin Rose Nurse Assistant Job Satisfaction Scale (6) was administered as a measure of job satisfaction before and after implementation of the program. A score of 0 reflects a highly dissatisfied employee and a score of 3 reflects a highly satisfied employee. This measure has been shown to demonstrate appropriate validity and reliability of .92 (6).
The Cohen-Mansfield Agitation Inventory (2) was completed by employee participants for all participants at pre-and post-implementation of the program. Familiar staff rated levels of agitation for 29 types of physical and verbal aggressive and non-aggressive behavior. While there are subscales to this measure, for the purposes of this study, participants were given an overall agitation score, ranging from 150 (maximum agitation) to 29 (minimum agitation). Cronbach’s alpha for this measure was reported to be .86, .91 and .87 for raters (2).
A Program Implementation Checklist adapted from the AMI MDA standards was developed to record the frequency of the program features/standards in place before and after the program was implemented.  As shown in Table 1, three standards areas were assessed: Leadership (7 features), Staff (9 features) and Prepared Environment (6 features), for a total of 88 required components of a fully implemented program. Each feature was observed to be:  0=Not at all implemented; 1=started to be implemented; 2=moderately implemented; 3=mostly implemented; 4=fully implemented.

Data Analysis

All raw data was entered into Microsoft Excel and later SPSS 24. Descriptive data analysis of all variables included means, standard deviations and ranges of responses. Pre-post and paired sample t-test comparisons were conducted as appropriate.

Implementation of Montessori Program Procedures

After obtaining consent for the elder participants, and collecting the pre-implementation measures the project began with a two-day educational workshop by the first author; 80% of the care partners, nurses, and other life enrichment staff who worked in the care area attended the workshop (8 Life care enrichment staff, 3 nurses, and 11 care partners, respectively). The didactic, interactive presentation included hands on practice with Montessori materials. A team was then created to lead the Montessori initiative within the community. This team, in collaboration with the first author, identified barriers to participation and needed environmental cues to support the Montessori activities. The following environmental changes were made: replaced room name and number plate room signs with photos that were enlarged, enhanced with a colorful border, framed, and hung on the wall next to the elder’s bedroom doorway; furniture was rearranged to increase resident activity participation; wayfinding signage and cues were created; wayfinding cues (large colorful themed decals) were placed at the entrance to elder bedroom hallways and new signage was designed and mounted to improve the elders’ ability to find common locations such as their rooms, the dining room and the living room.  Kelly green name tags were implemented for all employees and elders within the community. Name tags were of appropriate type size and font for elders to call both each other and other care partners by name throughout the living community.
Next, all elders’ interests, skills and abilities were documented through a “Life Story Form” which was co-constructed by assisted living employees and the 1st author (Appendix A). After reviewing these forms, 84 different types of activity materials were purchased or created by the authors, with approximately 25 displayed at one time on trays or in containers and placed in the living room bookcases. Signs were created for some of the activities to act as invitations for engagement.  Activities were based on elders’ interests and some examples included flower arranging, sewing, reading, games, sorting, folding laundry, or puzzles. A refreshment station was created to promote the independent consumption of food and drink throughout the day.
In addition, elders’ interests and desires were identified to match each elder with a community role to support purposeful and meaningful living. Prior to the implementation of the program, none of the elders had a community role. Possible community roles included wiping down tables and chairs after meals, garden caretaker, delivering cards, setting tables, passing out waters, serving appetizers, folding bulletins, visiting other residents, writing the menu for lunch and supper, playing the piano for sing a longs and bible study, delivering mail, volunteering in the mini mart volunteer, creating art with a fellow resident. Families and staff were also instructed, via a workshop on making memory books, to support both conversation and activities of daily living.
Weekly coaching calls that ranged in time from 30 minutes to 120 minutes were conducted with the first author and the Life enrichment staff for a 1-year period.  These calls were designed to problem solve barriers to program implementation, as described below.

 

Results

Twenty-nine elders participated in the implementation of Montessori for Aging in Dementia had a mean age 89.52 years (SD = 7.17) The majority of participants were female (26/29) and wore glasses (22/29). Most of the participants did not wear hearing aids (23/29). All of the participants spoke English, and one participant was bilingual, also speaking German fluently. All participants passed a conversational screening (8), demonstrating ability to participate in conversation verbally at least at the word level. The majority of participants passed a reading screening (9) (20/29) at a 12-point font, (3/29) at a 16-point font, (2/29) at a 24-point font, and (1/29) at a 36-point font. Three participants did not pass the reading screening due to significant visual challenges; however, these participants were still included in the study as they participated in personalized roles and activities that did not require fine use of vision or visual cues. Participants’ Montreal Cognitive Assessment[10] mean scores were 9.86 out of 30 (SD = 5.71; range = 2 – 25). All employee participants were female, except for one male; 8 were Life care enrichment staff, 3 were nurses, and 11 were care partners.
The first goal of this evaluation was to demonstrate implementation of the MDA program by increasing the adoption of leadership, staff, and environmental features of the program. Table 1 illustrates the pre- and post-scores on the MDA Implementation checklist. Staff and elders were observed, policies and practices were reviewed and the environment was evaluated to determine the degree of implementation of each Montessori program standard. Each standard was rated on a Likert scale reflecting ‘0’ meaning no implementation and ‘4’ meaning fully implemented. Likert scale ratings were then converted to percentages to describe the degree to which the community was enacting the practice: ‘0’ or not at all implemented, 25% implemented; 50% implemented; 75% implemented or 100% or fully implemented.
Upon paired t-tests, significant differences for each aspect of the program (i.e., Leadership (p<.01), Staff (p<.002), and Environment) (p<.04) were demonstrated by comparing pre- and post- program implementation features. Although these data confirm that significant changes were made in all program areas, the implementation percentage scores ranged from 67% to 71% at the end of the study, documenting that the program was less than fully implemented.
The second goal of this program was to increase elder engagement in purposeful activities, improve sense of well-being, improve affect, reduce psychotropic medication use, hospitalizations and falls, and reduce occurrence of elder neuropsychiatric symptoms due to dementia, and thereby, improve perceived quality of life. The frequency of falls, medications, hospitalizations and neuropsychiatric symptoms due to dementia from nursing notes pre- and post-implementation are documented in Table 2. After frequency and then descriptive analysis, none of the paired sample t-test pre-post comparisons were significantly different.  In addition, there were no statistically significant pre-post paired sample t-test differences between the means of the frequency and/or intensity of agitated events as rated by the employees for the elder participants in the study on the Cohen-Mansfield Agitation Inventory (2).

Table 2
Pre- and Post-Implementation frequency of neuropsychiatric symptoms due to dementia, falls, hospitalizations, and medications, Cohen-Mansfield Agitation Inventory

Note:  None of the pre-post comparisons were significantly different.

 

Descriptive analysis of the Observation Measure of Engagement (3) which included subscales of Attention and Attitude, included mean, standard deviation and range of variables. Paired sample T-test comparisons did not reveal any significant changes pre- and post-program implementation. Descriptive analysis of means via a paired sample t-test on the Observed Emotion Rating Scale (4), however, revealed a significant increase in positive emotions from pre-implementation, (M=3.35, SD =1.04) to post-implementation (M=3.97, SD=.76); t(28)=-2.83, p = .009.  Table 3 displays the means pre- and post-program implementation for the observational measures of engagement and affect.  Reliability for each point of observation on these two measures was completed by two independent observers and point-to-point agreement was 80% or greater, with a range of 80% to 100% agreement.  In addition, 15 out of 29 elders had a purposeful community role post program implementation.

Table 3
Pre- and Post-Implementation scores on the Observed Measure of Engagement3 and the Observed Emotion Affect Scale4

Note:  * p<.01

 

The Dementia Quality of Life Scale (5) captured significant positive outcomes from pre-program implementation to post-program implementation in the areas of self-esteem, positive affect and belonging. These mean data are further displayed in Table 4 and results of paired t-tests reveal the following significant differences for self-esteem, positive affect, and belonging respectively, t(28)=-4.21, p = .000; t(28)=-2.45, p=.017; t(28)=-5.03, p=.000. Significant changes were not, however, noted in negative affect or aesthetics.

Table 4
Pre- and post-implementation scores on the Dementia quality of life scale5

Note:  * p<.01; **p<.001

 

Descriptive analysis of the job satisfaction survey in terms of means, standard deviations and range of responses was also conducted. Staff displayed statistically significantly higher job satisfaction (6) from pre-implementation (M=1.56, SD =.32) to post-implementation (M=2.04, SD=.5); t(20)=-3.4, p = .003 according to paired sample t-tests.

 

Discussion

The purpose of this study was to evaluate the implementation of the MDA program in an assisted living facility and document elders’ and staff outcomes.  After 1 year, the community had adopted 68% of program features compared to 28% at study start. This represents statistically significant improvements in each area of the AMI MDA program, Leadership, Staff, and Environment.   One very critical barrier to implementation was the lack of a large, cohesive, multidisciplinary team to lead and sustain this initiative.  During the project, the community experienced higher than typical staff turnover for their community, which resulted in lower than normal staffing levels.  Nursing management worked overtime as caregivers to meet the basic needs of the elders. This meant that nursing management and front-line nursing staff were not available for the Montessori team meetings.  In addition, there was turnover in the Life Enrichment department, so this department also operated with less than normal staffing for several months.  A new Life Enrichment assistant needed to be trained in the middle of the project.  The dietary department was also negatively affected by turnover, which made it difficult to collaborate with this department and incorporate aspects of the Montessori program at meal times.  These staffing challenges made it problematic to both implement and sustain the Montessori program because staff were focused on addressing the immediate care issues of the elders; there was limited time for helping the elders to learn how to engage in new and different types of activities.  As a result, the bulk of the program responsibilities were managed by the Life Enrichment Specialist and the Director of Dementia Care Services.
It should be noted that in comparison to other communities that have implemented a Montessori-based approach11, this project measured the program features implemented via a fidelity measure, the MDA Implementation Checklist.  It is important for future programs to document the fidelity of their implementation in order to be able to compare across studies and to better understand the relative importance of specific program features.
With the documented level of implementation at 68%, elders in this study responded to the changes implemented by displaying significantly more positive emotions, affect, and feelings of self-esteem and belonging after the intervention.  These quality of life improvements may be related to a variety of changes made to the environment, the increase in activities and roles, and the behaviors of the staff as a result of their training. Future studies will need to evaluate the relative importance of these different feature changes; the current study was not designed to do a components/feature analysis.  Although positive trends were documented for increased engagement, the fact that the program was not fully implemented may explain the lack of significant differences in engagement by elders. The fact that only 15 of the 29 elders were engaged in a community role at the end of the project suggests that additional staff training may be necessary to support these roles.
It is important to note that there were no statistically significant changes in the variables that have been reported to change in other Montessori programs (11).  Desired reductions in medication use, falls, hospitalizations, and neuropsychiatric symptoms due to dementia were not documented, possibly due to the fact that the frequency of these instances was relatively low, with the exception of medications, at the start of the study.  An additional rationale for this result may include the lack of statistical power due to decreased sample size.
Overall, employee job satisfaction was higher after the implementation of the program; the staff who participated in the training and witnessed changes in the elders reported a greater degree of job satisfaction.  The persistent challenges of short-staffing and staff turnover may have interfered with staff fully implementing the program and thereby not experiencing the potential benefits of the program.

 

Conclusions

Overall this study documents the value of a person-centered, Montessori-based approach to the care of elders with dementia and other conditions of aging.  Implementation of specific leadership, staff, and environmental features leads to changes in the quality of life and affect of individuals with dementia and in the job satisfaction of the staff employed to care for them. Future documentation of the full implementation of this MDA approach has the potential to change significantly the culture of care and quality of life outcomes of persons with dementia.

 

Funding sources: This work was supported by the State of Michigan Health Endowment Fund and Blue Cross Blue Shield of Michigan Foundation.  The sponsors had no role in the design and conduct of the study; in the collection, analysis, and interpretation of data; in the preparation of the manuscript; or in the review or approval of the manuscript.

Conflict of Interest: Ms. Brush reports personal fees from Clark Retirement Community during the conduct of the study; personal fees as Owner, Brush Development, outside the submitted work; and serves as a volunteer member of the Association Montessori International Advisory Board for Montessori for Dementia and Aging. Dr. Douglas reports personal fees from Brush Development, during the conduct of the study. Dr. Bourgeois reports personal fees from Brush Development Company during the conduct of the study; and serves as a volunteer member of the Association Montessori International Advisory Board for Montessori for Dementia and Aging.

Ethical Standard: The Institutional Review Board of Ideas Institute approved all study procedures and consent forms. An introductory letter and consent form was sent to the person holding durable power of attorney for each elder in the community.  A simplified assessment to participate was given to all elder participants.  No baseline data was taken until after receipt both of the signed power of attorney consent form and signed participant assent. Both documents were kept by the lead researcher in a secure location.

 

References

1.    Association Montessori Internationale.  Advisory Group Charter, Quality Areas, Standards and Indicators. Amsterdam, Netherlands: Author, 2015
2.    Cohen-Mansfield, J., Marx, M., & Rosenthal, A. A description of agitation in a nursing home. Journals of Gerontology, 1989;44(3), M77-M84.
3.    Cohen-Mansfield, Ph.D., J. Maha Dakheel-Ali, M., &  Marx, M.S. Engagement in persons with dementia: the concept and its measurement.  Am J Geriatr Psychiatry. 2009; Apr; 17(4): 299–307.
4.    Lawton, M.P., Van Haitsma, K.S., & Klapper, J.A.  Observed Affect in Nursing Home Residents.  Journals of Gerontology B: Psychological Sciences, 1996;51:1, 3-14.
5.    Brod, M, Stewart, A.L., Sands, L., & Walton, P. Conceptualization and Measurement of Quality of Life in Dementia: The Dementia Quality of Life Instrument (DQoL) The Cerontologist, 1999; Vol. 39, No. 1, 25-35.
6.    Kiefer, K, Harris-Kojetin, L. Brannon, D, Barry, T., Vasey, J.& Lepore, J. Measuring LONG-TERM CARE WORK:A Guide to Selected Instruments to Examine Direct Care Worker Experiences and Outcomes. US Department of Health & Human Services, Office of the Assistant Secretary for Planning & Evaluation, US Department of Labor, Office of the Assistant Secretary for Policy, 2005, Appendix 3, page 60S.
7.    Camp, C. J., Bourgeois, M. S., & Erkes, J. Person-centered care. In G. Smith (Ed.) APA Handbook of Dementia (pp. 615-629). American Psychological Association: Washington, D.C, 2018.
8.    Bourgeois, M., Dijkstra, K., Burgio, L., & Allen-Burge, R. Memory aids as an AAC strategy for nursing home residents with dementia.  Augmentative and Alternative Communication, 2001;17, 196-210.
9.    Benigas, J., Brush, J. & Elliot, G. Reading Screening in Spaced Retrieval Step by Step.  Baltimore, MD: Heath Professions Press, pages 2016;40-41.
10.    Nasreddine ZS1, Phillips NA, Bédirian V, Charbonneau S, Whitehead V, Collin I, Cummings JL, Chertkow H. The Montreal Cognitive Assessment, MoCA: a brief screening tool for for mild cognitive impairment. J Am Geriatr Soc. 2005; 53:695-699
11.    Bourgeois, M., Brush, J., Elliot, G., & Kelly, A. Join the Revolution:  How Montessori for Aging and Dementia can change long-term care culture. Seminars in Speech & Language, 2015;36(3), 209-214

IMPLEMENTATION OF THE MONTESSORI PROGRAM IN ASSISTED LIVING: POSITIVE OUTCOMES AND CHALLENGES

 

J. Brush1, N. Douglas2, M. Bourgeois3

 

1. Brush Development, Chardon, OH, USA; 2. Central Michigan University, Mount Pleasant, MI, USA; 3. University of South Florida, Tampa, FL, USA.  Corresponding author: Jennifer Brush, Brush Development, 9935 Campton Ridge Drive, Chardon, OH 44024, jennifer@BrushDevelopment.com, 440-289-0037

 

Jour Nursing Home Res 2018;4:42-48
Published online October 18, 2018, http://dx.doi.org/10.14283/jnhrs.2018.8

 


Abstract

The purpose of this study was to evaluate the impact of the implementation of the Association Montessori Internationale (AMI) Montessori for Dementia and Aging (1) (MDA) program in a memory care Assisted Living community. A pre-post quasi experimental descriptive study was conducted with 29 elders in an assisted living community. The AMI MDA program1 was implemented over the course of one year; adoption of program features was documented pre- and post-implementation. Outcomes for elders included number of neuropsychiatric symptoms due to dementia (Cohen-Mansfield Agitation Inventory (2)), falls, medications and hospitalizations; attitude, attention and engagement (Observational Measure of Engagement (3)), affect (Observed Emotion Rating Scale (4)); and the Dementia Quality of Life Scale (5). The Benjamin Rose Nurse Assistant Job Satisfaction Scale (6) was used to measure employee job satisfaction before and after implementation of the program. After 1 year, the community had adopted 68% of program features compared to 28% at study start. Elders displayed significantly more positive emotions, affect, and feelings of self-esteem and belonging after the intervention; positive trends were documented for increased engagement. Overall, employee job satisfaction was higher after the implementation of the program; barriers to full implementation, however, were identified.

Key words: Montessori, aging, dementia, assisted living.


 

Introduction

A new person-centered approach for long-term care and aging in place communities, AMI Montessori for Dementia and Aging (1) extends the tenets of person-centered care by focusing on the abilities, needs, interests, and strengths of persons with dementia. This innovative team approach creates worthwhile and meaningful roles, routines, and activities for the person within a supportive physical environment. Montessori’s philosophy was to enable persons to be as independent as possible, to have a meaningful place in their community, to possess high self-esteem, and to have the chance to make meaningful contributions to their community. The purpose of this study was to evaluate the impact of the implementation of the AMI MDA (1) program on elder and staff outcomes in a memory care Assisted Living community. The AMI MDA program was created based on the pedagogical philosophy of Dr. Maria Montessori and evidenced based person-centered approaches (7) to dementia care.  The merging of the two disciplines results in a person-centered approach to life that addresses the cognitive, physical, spiritual, social and emotional needs of elders and those living with dementia. This approach facilitates changes to the way one interrelates with elders and people with dementia by improving the quality of interactions.  The goal of the program was to form and maintain a caring community that is aligned with elders’ needs, interests, and abilities by creating an environment that is carefully prepared to provide opportunities for success, choice, enhanced independence and self-initiated activity. Elders’ lives are therefore enriched through the engagement in roles, routines and activities, fostering a sense of community belonging and well-being.
The AMI Montessori for Dementia and Aging Advisory Board has established standards and quality indicators for the application of Montessori in an aged care setting (1).  The standards address three critical areas of program implementation: leadership; staff; and the prepared environment.  In a community that has fully implemented this philosophy, the organizsation’s leadership encourages elders to be actively involved in the decision making related to daily life.  Multi-disciplinary teams are created, with a commitment to working together, with the purpose of meeting the needs of each person in their care.  In addition, the organization’s leadership uses effective communication tools to give staff, families, and elders a full understanding about the Montessori approach. There are financial commitments to budget allocations for best practice resources and staff training is conducted by a certified AMI Montessori for Dementia and Aging Educator. There is a formal commitment to continuous improvement of the implementation of MDA.  For instance, staff collect, maintain and use a comprehensive individual profile of needs, interests and strengths. Through collaboration with elders and their families, staff actively seek out and create opportunities for elders to act independently, exercise choice, move about with freedom and engage in activities of interest. Throughout the day, observation is utilized as a key tool for reflection and identification of individual needs. The environment must be visually organized and aesthetically pleasing. Shared spaces in the care community must provide enticement to engage by having dedicated, interactive areas allocated for activities. A Montessori community has evidenced-based cues and modifications in the environment to support independence. The environment should offer a full complement of appropriate multisensory materials, resources and activities that are accessible at any time.

Study Purpose

The purpose of this project was to implement and evaluate the AMI MDA program in a memory care Assisted Living community.  The program had the following goals:
1. Demonstrate implementation of the MDA program by increasing the adoption of environmental, staff, and leadership features of the program.
2. Increase elder engagement in purposeful activities, improve sense of well-being, improve affect, reduce psychotropic medication use, hospitalizations and falls, and reduce occurrence of neuropsychiatric symptoms due to dementia.
3. Increase staff job satisfaction.

 

Methods

The Institutional Review Board of Ideas Institute approved all study procedures and consent forms. This study utilized a pre-post, quasi-experimental design to implement and evaluate outcomes of the MDA program in one Midwestern assisted living in the United States. The assisted living is part of a non-profit continuing care retirement community housed on two campuses that includes independent and assisted living as well as skilled nursing.  The assisted living area contains 42 private bedrooms and shared activity, dining and living room spaces.

Participants

Study participants were (1) 29 elders with dementia or other cognitive impairment who resided in the community and (2) 22 employees of the assisted living community. An introductory letter and consent form was sent to the person holding durable power of attorney for each elder in the community.  After receipt of the signed consent form, the authors reviewed the elder’s medical chart; completed a communication, cognitive and reading screening of the elder; conducted an observation during their daily activities; and completed the quality of life assessment. Participants who were employees of the assisted living community provided informed consent to complete the following: 1) a job satisfaction survey (6); and 2) a rating of the elder’s neuropsychiatric symptoms (2) throughout the course of 2-weeks.

Measures

Measures used to collect data from participants who were elders with dementia or other cognitive impairment included: 1) chart review confirming diagnosis of dementia or other cognitive impairment; frequency of hospitalizations, falls, neuropsychiatric symptoms due to dementia and medications per nursing notes in the six months before and 3 months after implementation of the program; 2) informal communication screening (8)) and reading screening (9)) ; 3) the Montréal Cognitive Assessment  (MoCA) (10); 4) the Observational Measure of Engagement (3); 5) the Observed Emotion Rating Scale (4)); and, 6) the Dementia Quality of Life Scale (5). Employee participants completed the Benjamin Rose Nurse Satisfaction Survey (6), and the Cohen-Mansfield Agitation Inventory (2) for elder participants in the study. Lastly, a program implementation checklist adapted from AMI MDA standards (Table 1) was also completed to assess program fidelity and measure specific elements of program implementation. All of these measures with the exception of the informal communication screening, reading screening and MoCA were re-administered post- implementation and are described in more detail below.

Table 1
Montessori for Aging and Dementia Program Implementation Checklist

 

After informed consent was completed, the second author reviewed each participant’s medical record to confirm diagnosis of cognitive impairment or dementia related disorder. The number of current medications, falls and hospitalizations was also recorded in the prior 6 months pre-implementation (6-months prior to implementation month 1) and at 3- months post-implementation. Finally, nursing notes were reviewed by the second author to assess frequency of neuropsychiatric symptoms due to dementia in the prior 6 months pre-implementation (6-months prior to implementation month 1) and at 3-months post-implementation. Neuropsychiatric symptoms due to dementia were defined as events that were significant enough for the nursing staff to record in a log and included violence toward other elders, inappropriate sexual advances toward other elders and verbal lashing out toward care partners.
The informal communication screening (8) was administered to each elder as well. The participant was asked his or her age, primary language, and they were observed as to whether or not they had glasses and/or hearing aids. During this process, elders were asked to about their education, hobbies, former occupation, likes and dislikes. The researchers observed conversational features of the elder including the ability to maintain topic, to initiate new topics, to request clarification, to take turns and ask questions. Researchers also noted if the elder was verbal at the single word, short phrase, few sentences or many sentences level. A reading screening was then conducted with each elder (9). Elders were assessed according to the optimal font for oral reading and reading for following simple, 1-step directions.
The MoCA (10) was completed with each elder for descriptive purposes only. The MoCA is a well-studied cognitive screener assessing visuospatial and executive functioning, naming, memory, attention, language, abstraction, delayed recall and orientation. Normal cognitive functioning is considered to be a score of 26 or higher out of 30 possible points, adding an additional point for any individuals who have 12 years of education or less.

The Observational Measure of Engagement (3) involved the investigators rating each elder according to ‘Attention’ and ‘Attitude’ during a 5-minute observation of the elder during an activity. Attention was rated on a 4 point Likert scale where 1 corresponds to ‘not attentive’ and 4 corresponds to ‘very attentive’. Attitude was ranked on a 7 point Likert scale, ranging from 1 (very negative) to 7 (very positive). Inter-rater reliability for this measure was reported to be 84% for engagement outcome measures (3).
The Observed Emotion Rating Scale (4) was completed for each elder as well. The investigators ranked elders according to their facial affect and other qualities that display either negative emotions or positive emotions. The maximum score for the display of both positive and negative emotions is 5, corresponding to the idea that the participant strongly displays that emotion. The minimum score for the display of both positive and negative emotions is 1, corresponding to the idea that the participant never displays that emotion. Kappa reliability for each of these emotion ratings was reported to be .76 or higher and validity, and validity estimates were also deemed supportive of the measure.
The Dementia Quality of Life Scale (5) is a self-report measure of 5-constructs of quality of life: positive affect, negative affect, feelings of self-esteem, feelings of belonging, and experience of aesthetics. Visual supports, including a 24-point type size rating scale and captioned pictures representing the topic of the questions, were used to support communication during the administration of this measure. Internal consistency of all constructs was reported to be .67 or higher
The Benjamin Rose Nurse Assistant Job Satisfaction Scale (6) was administered as a measure of job satisfaction before and after implementation of the program. A score of 0 reflects a highly dissatisfied employee and a score of 3 reflects a highly satisfied employee. This measure has been shown to demonstrate appropriate validity and reliability of .92 (6).
The Cohen-Mansfield Agitation Inventory (2) was completed by employee participants for all participants at pre-and post-implementation of the program. Familiar staff rated levels of agitation for 29 types of physical and verbal aggressive and non-aggressive behavior. While there are subscales to this measure, for the purposes of this study, participants were given an overall agitation score, ranging from 150 (maximum agitation) to 29 (minimum agitation). Cronbach’s alpha for this measure was reported to be .86, .91 and .87 for raters (2).
A Program Implementation Checklist adapted from the AMI MDA standards was developed to record the frequency of the program features/standards in place before and after the program was implemented.  As shown in Table 1, three standards areas were assessed: Leadership (7 features), Staff (9 features) and Prepared Environment (6 features), for a total of 88 required components of a fully implemented program. Each feature was observed to be:  0=Not at all implemented; 1=started to be implemented; 2=moderately implemented; 3=mostly implemented; 4=fully implemented.

Data Analysis

All raw data was entered into Microsoft Excel and later SPSS 24. Descriptive data analysis of all variables included means, standard deviations and ranges of responses. Pre-post and paired sample t-test comparisons were conducted as appropriate.

Implementation of Montessori Program Procedures

After obtaining consent for the elder participants, and collecting the pre-implementation measures the project began with a two-day educational workshop by the first author; 80% of the care partners, nurses, and other life enrichment staff who worked in the care area attended the workshop (8 Life care enrichment staff, 3 nurses, and 11 care partners, respectively). The didactic, interactive presentation included hands on practice with Montessori materials. A team was then created to lead the Montessori initiative within the community. This team, in collaboration with the first author, identified barriers to participation and needed environmental cues to support the Montessori activities. The following environmental changes were made: replaced room name and number plate room signs with photos that were enlarged, enhanced with a colorful border, framed, and hung on the wall next to the elder’s bedroom doorway; furniture was rearranged to increase resident activity participation; wayfinding signage and cues were created; wayfinding cues (large colorful themed decals) were placed at the entrance to elder bedroom hallways and new signage was designed and mounted to improve the elders’ ability to find common locations such as their rooms, the dining room and the living room.  Kelly green name tags were implemented for all employees and elders within the community. Name tags were of appropriate type size and font for elders to call both each other and other care partners by name throughout the living community.
Next, all elders’ interests, skills and abilities were documented through a “Life Story Form” which was co-constructed by assisted living employees and the 1st author (Appendix A). After reviewing these forms, 84 different types of activity materials were purchased or created by the authors, with approximately 25 displayed at one time on trays or in containers and placed in the living room bookcases. Signs were created for some of the activities to act as invitations for engagement.  Activities were based on elders’ interests and some examples included flower arranging, sewing, reading, games, sorting, folding laundry, or puzzles. A refreshment station was created to promote the independent consumption of food and drink throughout the day.
In addition, elders’ interests and desires were identified to match each elder with a community role to support purposeful and meaningful living. Prior to the implementation of the program, none of the elders had a community role. Possible community roles included wiping down tables and chairs after meals, garden caretaker, delivering cards, setting tables, passing out waters, serving appetizers, folding bulletins, visiting other residents, writing the menu for lunch and supper, playing the piano for sing a longs and bible study, delivering mail, volunteering in the mini mart volunteer, creating art with a fellow resident. Families and staff were also instructed, via a workshop on making memory books, to support both conversation and activities of daily living.
Weekly coaching calls that ranged in time from 30 minutes to 120 minutes were conducted with the first author and the Life enrichment staff for a 1-year period.  These calls were designed to problem solve barriers to program implementation, as described below.

 

Results

Twenty-nine elders participated in the implementation of Montessori for Aging in Dementia had a mean age 89.52 years (SD = 7.17) The majority of participants were female (26/29) and wore glasses (22/29). Most of the participants did not wear hearing aids (23/29). All of the participants spoke English, and one participant was bilingual, also speaking German fluently. All participants passed a conversational screening (8), demonstrating ability to participate in conversation verbally at least at the word level. The majority of participants passed a reading screening (9) (20/29) at a 12-point font, (3/29) at a 16-point font, (2/29) at a 24-point font, and (1/29) at a 36-point font. Three participants did not pass the reading screening due to significant visual challenges; however, these participants were still included in the study as they participated in personalized roles and activities that did not require fine use of vision or visual cues. Participants’ Montreal Cognitive Assessment (10) mean scores were 9.86 out of 30 (SD = 5.71; range = 2 – 25). All employee participants were female, except for one male; 8 were Life care enrichment staff, 3 were nurses, and 11 were care partners.
The first goal of this evaluation was to demonstrate implementation of the MDA program by increasing the adoption of leadership, staff, and environmental features of the program. Table 1 illustrates the pre- and post-scores on the MDA Implementation checklist. Staff and elders were observed, policies and practices were reviewed and the environment was evaluated to determine the degree of implementation of each Montessori program standard. Each standard was rated on a Likert scale reflecting ‘0’ meaning no implementation and ‘4’ meaning fully implemented. Likert scale ratings were then converted to percentages to describe the degree to which the community was enacting the practice: ‘0’ or not at all implemented, 25% implemented; 50% implemented; 75% implemented or 100% or fully implemented.
Upon paired t-tests, significant differences for each aspect of the program (i.e., Leadership (p<.01), Staff (p<.002), and Environment) (p<.04) were demonstrated by comparing pre- and post- program implementation features. Although these data confirm that significant changes were made in all program areas, the implementation percentage scores ranged from 67% to 71% at the end of the study, documenting that the program was less than fully implemented.
The second goal of this program was to increase elder engagement in purposeful activities, improve sense of well-being, improve affect, reduce psychotropic medication use, hospitalizations and falls, and reduce occurrence of elder neuropsychiatric symptoms due to dementia, and thereby, improve perceived quality of life. The frequency of falls, medications, hospitalizations and neuropsychiatric symptoms due to dementia from nursing notes pre- and post-implementation are documented in Table 2. After frequency and then descriptive analysis, none of the paired sample t-test pre-post comparisons were significantly different.  In addition, there were no statistically significant pre-post paired sample t-test differences between the means of the frequency and/or intensity of agitated events as rated by the employees for the elder participants in the study on the Cohen-Mansfield Agitation Inventory (2).

Table 2
Pre- and Post-Implementation frequency of neuropsychiatric symptoms due to dementia, falls, hospitalizations, and medications, Cohen-Mansfield Agitation Inventory

Note:  None of the pre-post comparisons were significantly different.

 

Descriptive analysis of the Observation Measure of Engagement (3) which included subscales of Attention and Attitude, included mean, standard deviation and range of variables. Paired sample T-test comparisons did not reveal any significant changes pre- and post-program implementation. Descriptive analysis of means via a paired sample t-test on the Observed Emotion Rating Scale (4), however, revealed a significant increase in positive emotions from pre-implementation, (M=3.35, SD =1.04) to post-implementation (M=3.97, SD=.76); t(28)=-2.83, p = .009.  Table 3 displays the means pre- and post-program implementation for the observational measures of engagement and affect.  Reliability for each point of observation on these two measures was completed by two independent observers and point-to-point agreement was 80% or greater, with a range of 80% to 100% agreement.  In addition, 15 out of 29 elders had a purposeful community role post program implementation.

Table 3
Pre- and Post-Implementation scores on the Observed Measure of Engagement3 and the Observed Emotion Affect Scale4

Note:  * p<.01

 

The Dementia Quality of Life Scale (5) captured significant positive outcomes from pre-program implementation to post-program implementation in the areas of self-esteem, positive affect and belonging. These mean data are further displayed in Table 4 and results of paired t-tests reveal the following significant differences for self-esteem, positive affect, and belonging respectively, t(28)=-4.21, p = .000; t(28)=-2.45, p=.017; t(28)=-5.03, p=.000. Significant changes were not, however, noted in negative affect or aesthetics.
Descriptive analysis of the job satisfaction survey in terms of means, standard deviations and range of responses was also conducted. Staff displayed statistically significantly higher job satisfaction (6) from pre-implementation (M=1.56, SD =.32) to post-implementation (M=2.04, SD=.5); t(20)=-3.4, p = .003 according to paired sample t-tests.

Table 4
Pre- and post-implementation scores on the Dementia quality of life scale5

Note:  * p<.01; **p<.001

 

Discussion

The purpose of this study was to evaluate the implementation of the MDA program in an assisted living facility and document elders’ and staff outcomes.  After 1 year, the community had adopted 68% of program features compared to 28% at study start. This represents statistically significant improvements in each area of the AMI MDA program, Leadership, Staff, and Environment.   One very critical barrier to implementation was the lack of a large, cohesive, multidisciplinary team to lead and sustain this initiative.  During the project, the community experienced higher than typical staff turnover for their community, which resulted in lower than normal staffing levels.  Nursing management worked overtime as caregivers to meet the basic needs of the elders. This meant that nursing management and front-line nursing staff were not available for the Montessori team meetings.  In addition, there was turnover in the Life Enrichment department, so this department also operated with less than normal staffing for several months.  A new Life Enrichment assistant needed to be trained in the middle of the project.  The dietary department was also negatively affected by turnover, which made it difficult to collaborate with this department and incorporate aspects of the Montessori program at meal times.  These staffing challenges made it problematic to both implement and sustain the Montessori program because staff were focused on addressing the immediate care issues of the elders; there was limited time for helping the elders to learn how to engage in new and different types of activities.  As a result, the bulk of the program responsibilities were managed by the Life Enrichment Specialist and the Director of Dementia Care Services.
It should be noted that in comparison to other communities that have implemented a Montessori-based approach11, this project measured the program features implemented via a fidelity measure, the MDA Implementation Checklist.  It is important for future programs to document the fidelity of their implementation in order to be able to compare across studies and to better understand the relative importance of specific program features.
With the documented level of implementation at 68%, elders in this study responded to the changes implemented by displaying significantly more positive emotions, affect, and feelings of self-esteem and belonging after the intervention.  These quality of life improvements may be related to a variety of changes made to the environment, the increase in activities and roles, and the behaviors of the staff as a result of their training. Future studies will need to evaluate the relative importance of these different feature changes; the current study was not designed to do a components/feature analysis.  Although positive trends were documented for increased engagement, the fact that the program was not fully implemented may explain the lack of significant differences in engagement by elders. The fact that only 15 of the 29 elders were engaged in a community role at the end of the project suggests that additional staff training may be necessary to support these roles.
It is important to note that there were no statistically significant changes in the variables that have been reported to change in other Montessori programs (11).  Desired reductions in medication use, falls, hospitalizations, and neuropsychiatric symptoms due to dementia were not documented, possibly due to the fact that the frequency of these instances was relatively low, with the exception of medications, at the start of the study.  An additional rationale for this result may include the lack of statistical power due to decreased sample size.
Overall, employee job satisfaction was higher after the implementation of the program; the staff who participated in the training and witnessed changes in the elders reported a greater degree of job satisfaction.  The persistent challenges of short-staffing and staff turnover may have interfered with staff fully implementing the program and thereby not experiencing the potential benefits of the program.

 

Conclusions

Overall this study documents the value of a person-centered, Montessori-based approach to the care of elders with dementia and other conditions of aging.  Implementation of specific leadership, staff, and environmental features leads to changes in the quality of life and affect of individuals with dementia and in the job satisfaction of the staff employed to care for them. Future documentation of the full implementation of this MDA approach has the potential to change significantly the culture of care and quality of life outcomes of persons with dementia.

 

Funding sources: This work was supported by the State of Michigan Health Endowment Fund and Blue Cross Blue Shield of Michigan Foundation.  The sponsors had no role in the design and conduct of the study; in the collection, analysis, and interpretation of data; in the preparation of the manuscript; or in the review or approval of the manuscript.

Conflict of Interest: Ms. Brush reports personal fees from Clark Retirement Community during the conduct of the study; personal fees as Owner, Brush Development, outside the submitted work; and serves as a volunteer member of the Association Montessori International Advisory Board for Montessori for Dementia and Aging. Dr. Douglas reports personal fees from Brush Development, during the conduct of the study. Dr. Bourgeois reports personal fees from Brush Development Company during the conduct of the study; and serves as a volunteer member of the Association Montessori International Advisory Board for Montessori for Dementia and Aging.

Ethical Standard: The Institutional Review Board of Ideas Institute approved all study procedures and consent forms. An introductory letter and consent form was sent to the person holding durable power of attorney for each elder in the community.  A simplified assessment to participate was given to all elder participants.  No baseline data was taken until after receipt both of the signed power of attorney consent form and signed participant assent. Both documents were kept by the lead researcher in a secure location.

 

References

1.    Association Montessori Internationale.  Advisory Group Charter, Quality Areas, Standards and Indicators. Amsterdam, Netherlands: Author, 2015
2.    Cohen-Mansfield, J., Marx, M., & Rosenthal, A. A description of agitation in a nursing home. Journals of Gerontology, 1989;44(3), M77-M84.
3.    Cohen-Mansfield, Ph.D., J. Maha Dakheel-Ali, M., &  Marx, M.S. Engagement in persons with dementia: the concept and its measurement.  Am J Geriatr Psychiatry. 2009; Apr; 17(4): 299–307.
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